Impact of Covid-19 pandemic on Hospices (ICoH): Patient Cohort Report

Authors

Dr John I MacArtney, Marie Curie Senior Research Fellow, University of Warwick; Dr Joanna Fleming, Senior Research Fellow, University of Warwick; Dr Abi Eccles, Research Fellow University of Warwick; Dr Catherine Grimley, Research Assistant, University of Warwick; Helen Wesson, Research Assistant, University of Warwick; Dr Catriona Mayland, Senior Clinical Research Fellow, Honorary Consultant in Palliative Medicine, University of Sheffield; Dr Sarah Mitchell, GP and Senior Clinical Fellow, University of Sheffield; Shalene van Langen-Datta, Marie Curie Policy Officer; Ruth Driscoll, Marie Curie Head of Policy and Public Affairs, England; Professor Kathryn Almack, Professor, University of Hertfordshire; Professor Jeremy Dale, Professor of Primary Care, University of Warwick; Lynn Tatnell, Patient and Public Involvement representative; Lesley Roberts, Patient and Public Involvement representative
DOI: https://doi.org/10.31273/978-1-911675-02-0

Synopsis

This report describes the diversity of experiences of people with life-limiting illnesses who were supported by hospices in the West Midlands during the pandemic. It is one of four cohort reports – the others focus on carers, frontline hospice staff, and senior managers respectively – that form the evidence base for a Policy Report into the impact of Covid-19 on hospices. In these reports we address the nine key themes that were identified as potentially important in our previous collaborative knowledge synthesis (MacArtney et al., 2021) and seek to address some of the policy gaps we identified in our review of recommendations for hospice practice and policy (van Langen-Datta et al., 2022). Together these outputs are the result of an Economic and Social Research Council funded study (grant number: ES/W001837/1) that is one of the first studies to contribute an in-depth exploration of hospice-based experiences of the pandemic to the growing body of knowledge about the effectiveness and effects of changes to hospice services, at regional and national levels in response to Covid-19.

The aim of this report is therefore to explore experiences of those with life-limiting conditions the effects of the Covid-19 pandemic on the care and support to identify recommendations for clinical practice and healthcare policy. Drawing on these findings, this report offers recommendations for hospices and clinicians who continue to provide care and support for people with life limiting conditions during the ongoing pandemic. These recommendations will also be of interest to local commissioners who will need to work with hospices in their region to ensure people with life-limiting conditions receive the support they need, and national policymakers who will need to ensure the necessary resources and guidance are available.

Cover image of ICoH Report 1 - Patient Cohort Report

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Published

May 30, 2022

Series

The Impact and Implications of Covid-19: On the relational, social, and healthcare experiences of hospice care
Copyright (c) 2022 Dr John I MacArtney, Dr Joanna Fleming, Dr Abi Eccles, Dr Catherine Grimley, Helen Wesson, Dr Catriona Mayland, Dr Sarah Mitchell, Shalene van Langen-Datta, Ruth Driscoll, Professor Kathryn Almack, Professor Jeremy Dale, Lynn Tatnell, Lesley Roberts

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This work is licensed under a Creative Commons Attribution 4.0 International License.